making a difference today

Helping Tasmanian
Families live with
Muscular Dystrophy

And Allied Neuromuscular disorders

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Do you have
Muscular Dystrophy?

Register with MDT
Muscular Dystrophy Tasmania are determined to make a difference to people affected by the various forms of Muscular Dystrophy and Allied Conditions. 

If you, or your child have a neuromuscular condition please register with us.
Muscular dystrophy is a neuromuscular, genetic disorder which results in the progressive deterioration of muscle strength and function. The most common form in childhood is Duchenne Muscular Dystrophy, which can see a young boy using a manual wheelchair by the age of 8, and being completely dependent on an electric one by his early teens. Life expectancy for this disorder is usually only until early adulthood.

There are many other types of neuromuscular disorders, affecting people of all ages. While most forms of muscular dystrophy occur in babies or children, some others appear in late adolescence or adulthood. 

Muscular Dystrophy Foundation Australia (which is the peak body and national voice for the neuromuscular community) estimates that there are more than 40,000 people with an NMC in Australia. Based on Tasmania’s share of the national population – MDFA’s estimate is that there are likely to be close to 1,000 people living with a NMC right across Tasmania

Researchers and doctors are learning more about the causes of muscular dystrophy and various treatments are being trialled to stop the progression of the disease. Nonetheless, through early diagnosis, proper therapy and support an increased quality of life is possible.

UPCOMING EVENTS

Supported by the Crown through the Department of Health
MDT acknowledges and respects people’s cultural background, beliefs, values, ethnicity, age, gender and abilities.

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