Registrations are now open for in-person and online consultation sessions on Tasmania’s first Disability Inclusion Plan. You can register via the Tasmanian Disability Inclusion Plan consultation page on the Department of Premier and Cabinet website.
https://www.dpac.tas.gov.au/.../tasmanian-disability...
Webinars begin from 3 February and cover three topics: Tasmanian Government services, accessible communication and consultation, and safeguarding.
In-person sessions are being held in Hobart, Launceston and Ulverstone from 12 - 19 February. More details, including venues and the registration link, are available on the Tasmanian Disability Inclusion Plan consultation page.
The voices and ideas from people with disability, the disability sector, carers, families and the broader Tasmanian community matter.
Your contribution will help shape a strong plan for an inclusive future for all Tasmanians with disability.
Can’t make a session?
You can also complete a survey or make a submission in a format of your choice.
The discussion paper, Towards a Tasmanian Disability Inclusion Plan, provides background information and asks questions to consider.
To find the discussion paper in a format that suits you and to learn more about consultation activities, go to the Tasmanian Disability Inclusion Plan consultation page. For more information email disability@dpac.tas.gov.au or call 1800 431 211.
If you have a connection to neuromuscular disorders, care about supporting Tasmanian families, or simply want to make a difference in your community, we’d love to hear from you.
Our committee comprises the President, Vice-President, Secretary, Treasurer, and at least four General Committee members. By joining, you’ll play a key role in guiding our work, strengthening our programs, and helping us continue to provide vital support for people living with muscular dystrophy and other neuromuscular conditions.
This is a great opportunity to share your skills, contribute your voice, and be part of a small team making a big impact.
Details
Time: 5.15 pm
Date: Thursday, 2nd October 2025
Venue: Strategic National Officers, Level 1, 17 Bayfield Street, Rosny
If you’re interested or would like to learn more, please get in touch at mdtasmania@outlook.com
Join us on Sunday 16 November for the Elders Point to Pinnacle or Brooks Point to Pub.
Thanks to the support of Co-op Toyota, you can be part of the Muscular Dystrophy Tasmania team. If you have walked, run, or cheered with us before, you know it is a day full of fun, energy and orange. If you are new, this is your year to jump in.
Pledge to raise $200 for Muscular Dystrophy Tasmania and we will cover your $115 entry fee. Sign up by 30 October and be part of something amazing.
See the attached image for further details.
Do you love organising events and bringing people together? Here’s your chance to lead one of Tasmania’s most successful charity fundraisers.
We’re looking for a Volunteer Event Coordinator to take the reins of the Good Friday Charity Golf Day at Claremont Golf Club. Now in its eighth year for MDT, this iconic event raises between sixty and seventy thousand dollars annually to support Tasmanian Families living with neuromuscular conditions.
As coordinator, you’ll guide the planning from January through April, supported by a committed working group. From logistics and sponsorships to teams, marketing, and fundraising, you’ll have the opportunity to shape an already strong event and add your own fresh ideas.
What you’ll bring:
• Experience in events, fundraising, or community engagement
• Great organisational and communication skills
• Creativity and teamwork
• A passion for making a difference
Why get involved?
You’ll be leading a high-profile community event, working with a supportive and experienced team, and helping raise significant funds for a cause that matters. It’s also a fantastic achievement to add to your portfolio.
If this sounds like you, or for further information, email us at mdtasmania@outlook.com with a brief expression of interest and your background.
Let’s tee up something great together this Good Friday.
We’re thrilled that Muscular Dystrophy Tasmania has been chosen as the charity partner for the 24th Early Falcon Nationals, coming to Tasmania this October.
This national event is a highlight for car lovers across the country, bringing together a stunning collection of early Falcons and the passionate owners who keep them running. It’s not just about the cars – it’s about the stories, the history, and the community that’s formed around these classics over decades.
The Tassie Early Falcon Car Club is hosting this year’s Nationals, with a packed program of events in both Hobart and Launceston. Visitors can expect meetups, cruises, and some fantastic public displays, including the Parliament Lawns in Hobart, the National Automobile Museum in Launceston, and a big Show and Shine at PW1 on the waterfront.
We’re really grateful to the club for their support and proud to be involved in such a well-loved and iconic event. It’s going to be a great week celebrating Aussie motoring history, and we’re excited to be part of it.
More about the 24th Early Falcon Nationals here: https://www.facebook.com/groups/8490790864351539/
The U.S. FDA has just granted Breakthrough Therapy designation to a promising new treatment called del-zota (delpacibart zotadirsen) for people with Duchenne muscular dystrophy amenable to exon 44 skipping.
This is a major step forward. It means the drug has shown early signs of real benefit and will now be fast-tracked for approval in the U.S. The company behind it, Avidity Biosciences, plans to submit for full approval by the end of the year.
So what does this mean for Australians?
• New hope for families impacted by DMD exon 44. A targeted therapy that could slow disease progression and improve quality of life.
• Faster global momentum. FDA approval often leads to earlier access in other countries, including Australia.
• Potential clinical trials and early access programs here at home.
• Advocacy matters. This breakthrough strengthens the case for urgent access through the TGA and PBS.
• But we need to push for equity. Once available, we’ll need to ensure all eligible Australians can access it, regardless of postcode or income.
It’s a powerful reminder of how far research has come, and how important it is to keep pushing forward.
We’ll keep you updated as this progresses. Let’s keep the pressure on to make sure Australians aren’t left behind.
#Duchenne #DelZota #MuscularDystrophy #HopeForDMD #MDT
We’re incredibly proud to have Peter Gee as the Patron of Muscular Dystrophy Tasmania. Many Tasmanians will remember Peter as the familiar and trusted face of ABC News for two decades, but his impact extends well beyond the television screen.
Peter started out in country Victoria radio, inspired by legendary cricket commentator Alan McGilvray. After training at Clarke Sinclair’s radio school, he got his start at 3CS Colac before joining the ABC in 1980. Over the next 18 years, he became one of the ABC’s most respected sports commentators, covering the Olympics, Commonwealth Games, cricket, golf and even sheepdog trials. One of his career highlights was calling Kieren Perkins’ gold medal swim at the Atlanta Olympics in 1996.
In 1998, Peter made the move to television news and became the senior presenter of ABC’s 7pm bulletin in Tasmania. He guided us through major national and international events with calm authority and integrity, becoming a trusted voice in countless Tasmanian households. He signed off in 2018 after 38 years with the ABC, described by colleagues as a generous and deeply respected broadcaster.
Since retiring, Peter has remained actively involved in the Tasmanian community. In 2023, he completed the full length of the UK on a bike, riding from Land’s End to John o’Groats – known as LeJog – alongside his close friend Adrian Smith. The self-funded ride raised money to help provide a wheelchair-accessible vehicle for a young Tasmanian boy with Duchenne muscular dystrophy. The journey was also documented in their podcast Pushing It Uphill, where they shared the challenges, reflections and human stories behind the ride.
For regular attendees of MDT functions and sports days, Peter has become a familiar face. Long before he officially became our patron, he was already part of the MDT family. Quick with a smile, an encouraging word and a helpful demeanour, Peter has quickly endeared himself to our volunteers, clients and supporters.
He brings to MDT not just his public profile, but a genuine commitment to helping Tasmanians living with neuromuscular conditions. His support helps shine a light on the challenges our community faces and the practical support that makes a real difference.
The colder months bring colds, flu, COVID-19 and RSV, so it’s time to prepare, plan and protect.
Prepare for respiratory illnesses by being up to date with flu, COVID-19 and RSV vaccinations. They’ll boost your immunity and protect you from severe illness.
Speak to your GP, pharmacist or healthcare provider about what vaccines are recommended for you.
Find out more at www.health.tas.gov.au/winter-wellness
Only a few weeks to go till the Brody Saville trophy is up for grabs again! Thanks to all of our regular teams who will be joining us once again - your incredible support is appreciated by all of us here at MDT.
The Good Friday Classic still has a couple of team spots open so if you're interested in joining us for Tasmania's premier Charity Golf Day go here: https://www.golfgenius.com/register?league_id=10609390691765198661
Be quick though - these spots won't last long!
The Good Friday Golf Day saw a range of items up for auction, including one particularly unique piece: a hand-painted portrait by local artist Robi Glimar, who also goes by the moniker "The Glimar Man". Robi is well-known in the community for his artistic talents and his dedication to giving back, and he generously donated his time to create the portrait for the auction.
The winning bid for the portrait came in at an impressive $1590, with the lucky bidder being Rod Scott. Rod now has a one-of-a-kind piece of art that will stand the test of time, thanks to Robi's skillful use of spray cans to create a lasting image.
The process was documented with photos of Robi at work, and the finished product featuring both Robi and Rod can be seen below.The addition of Robi's portrait to the auction added a new dimension to the day, and his generous donation helped to substantially boost the funds raised. Robi's artistic talents can be seen on display on his website, where he showcases his incredible work for all to see. https://theglimarman.com.au/
